After I got home it took me a while to adjust to my new life. I was still a little bit weak. Oh I forgot to add that when I had a routine bronch on March 6 they found that I had influenza A, which was not good and my immune system is so compromised. I was immediately started on Tamiflu for 5 days. My lung function also plummeted during this time. I was up to 56% and I dropped into the 40's. I thought I was over the flu after a few weeks but apparently I was not. I ended back in hospital April 23-29 because I was feeling so awful and my lung function continued to drop into the 30's. I had had a nasal swab done a week before this and they again found that I still had the flu. I was also swollen up like a marshmallow. They figured I had about 5kg of extra fluid on me. I was once again put on Tamiflu for 2 weeks and Lasix to get rid of the fluid. When I got discharged I was feeling better and ready to go home and get in a new routine.
A routine that consists of pills, iv med, breakfast, rest, lunch, exercises, rest, supper, rest, pills, iv med, and then bed. It sounds worse than it is though. I still get out with my mom and go shopping and such.
Here are a few pictures of us getting out and having a good time!