I see the last time I posted was February so I guess I have a little bit to catch up on (if I can remember that far back).
It is the middle of June already.
I guess it wasn't a very exciting winter as I don't really have much to say. I made it through with no hospital admission and have been relatively stable. I'm still going to clinic in Calgary monthly. Those docs down there sure have me on a short leash! Although I must say, they are doing a great job!
I could babble on and on about how I've been feeling, but what's the fun in that. I'm fine.
My PFT's are stable.
My weight is stable.
Not diabetic yet.
Still taking lots of drugs.
First I would like to start by complaining about how sick and tired I am of being on a leash 24/7. And no I don't mean the leash I mentioned earlier (you know, the short one my docs have me on). I mean this 55 foot hose that follows me everywhere and nearly rips my ears off about 2000000 times a day. I mean, I don't even know what it is like to get up off the couch and run to the fridge anymore without ensuring my hose is free of obstacles. Speaking of obstacles, my dog, Chance, is my biggest, most annoying obstacle that I have to overcome on a daily basis. I mean, I know he loves me a lot and wants to follow me around, but stepping/laying on my hose every time I want to go anywhere is just no longer acceptable. Note to self: Research online how to train your dog to stay OFF your oxygen tubing. Other people have this problem, I'm sure. There must be articles about it!
Oh, I do love my dog though. Here let me show you his beautiful before and after pictures of his haircut this year.
Pretty cute eh?
Another thing I have been thinking about is how I don't even remember what I look like without oxygen on. It has been over 2 years now people! After my transplant I'm going to look in the mirror and not know who it is looking back at me. Also, I've established habits with my oxygen that are going to be hard to break. For example, getting dressed.
Step 1: Oxygen off
Step 2: Shirt off
Step 3: Oxygen back on
Step 4: New shirt on
Step 5: Oxygen off, feed under shirt until it comes out the bottom
Step 6: Oxygen back on, on top of shirt
I mean after transplant, how am I just going to cut out Steps 1, 3, 5, and 6. I am going to reaching for tubes that don't exist and people may look at me strange. Although, changing my shirt in public is not something I am planning on doing a lot of after transplant.
Another thing with this oxygen.....what's it going to be like to just put on a pair of shoes and walk out the front door. I mean right now its a 5-10 minutes ordeal.
Step 1: Walk downstairs
Step 2: Grab portable oxygen
Step 3: Disconnect oxygen tubing from home oxygen
Step 4: Reconnect oxygen to portable oxygen
Step 5: Find and put on shoes
Step 6: Grab a jacket
Step 7: Pick up 2000000 pound machine and lug to vehicle
Think about this one. After transplant I can say goodbye to steps 2, 3, 4 and 7. How exciting, what am I going to do with all my spare time?
Those are just a couple things that I can look forward too after transplant. There are going to be soo many other things that I'll be able to do without worrying about oxygen. Like showering, ooooh showering. That will be nice to do tube-free. I'm starting to realize how dogs feel when they're on a leash. But don't compare me to a dog, because I have much more self control and don't NEED this stupid leash for that reason.
Now that I've complained for a bit, let me tell you about a couple good things!!
1. I became an aunt again. My stepbrother and his wife Trina had another baby, Connor! (see below)
2. My nephew Kaden turned 2
3. Mom and I are going on a mini-vacay to Jasper in July (which I'm super stoked for!)
4. I went to see Luke Bryan in Edmonton (see pics below)
5. Pool ended, which is kind of a bummer, but I'm actually going to play on the team starting in Sept.
6. I volunteer once a week and the mall selling pull tickets for the hospital
7. There is a big golf tournament hosted by Cheers Pub this weekend and I am volunteering there. They are having the tournament for Cystic Fibrosis. It's going to be awesome.
8. I survived the freezing winter and can now venture outside more!
9. Big Brother is coming back on in 2 weeks! (I can see numerous eye rollings going on right now)
10. I get to go camping again.
11. I got a sweet hammock to lounge in the backyard now!
I know there's more good stuff, I will think of more later!